Theo Lucas Kingsley Monk:
	Our beautiful boy

			This is the website for Theo Monk. Theo had a tragically short life. He was a very special boy in every way and he enchanted all the people who knew him. His early death at 6 years old affected everyone. This website was set up to ensure that his story can be told and that others may learn how special he was. Theo had an unusual array of special needs. He had a shopping list of non-compatible difficulties: no co-morbidity here! Theo had congenital stationary nightblindness (CSNB),  complex learning disabilities (also known as profound learning difficulties) and autism.  Theo had no specific overarching diagnosis.  (There is an American organisation, SWAN - Syndrome, Without A Name - which highlights lots of children in a similar situation to Theo.)  His story may give encouragement to others who have children with unusual difficulties which keep the medical profession guessing. He also showed that having no recognised syndrome does not hinder progress or confine a child to pre-defined “boxes”. Life was hard for Theo in that he had to work hard to achieve the physical milestones of sitting and walking. Life was also beautiful in that music, food and love sustained him. Not much to ask for so much in return. A friend has designed a necklace in memory of Theo. Click here. I hope this website is informative and useful to others. If you have any queries or comments you wish to share, please contact me on: anna@theo-monk.co.uk Thank you for taking the time to read this website. Newbold on Stour, Stratford upon Avon, Warwickshire.
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